Jul 11 2016
We went on vacation last week, and it’s not lost on me that we’re now part of a narrowing group of American families who can afford ridiculous luxuries like paid time off and time together in the sun and water. Never mind that this holiday was paid for by Nana and Papa, and not us; we won’t pretend generous grandparents involved in their grandkids’ lives and with the means to gift us family time isn’t its own elite past time. We’re beyond lucky. We know it, and we walk a line that’s littered with guilt and gratitude in equal measure.
I posted pics on Facebook to prove we vacationed. Our happy family. Smiles, surf, sun and silliness. And I didn’t feel guilty about that. Not even a little. I still don’t, in spite of the loud voices everywhere telling us we’re Fakebooking when we post the pretty things and are trying to deceive our friends by highlighting only the joyful parts of life and omitting the rest. Facebook is my scrapbook. It’s where I hold happy memories. And the more happy on Facebook the better, in my opinion. POST ALL THE LUNCH PICTURES, I say. I WANT TO SEE YOUR PRETTY SANDWICH, friends. And ALL THE BABY PICS, too. TOO MANY CUTE KID PICS, PLEASE. When did we decide to be the cranky, old lawn neighbors, anyway? “Damn kids! Keep your happy off my Facebook lawn!”
I feel guilty, in other words, for having a vacation at all. Guilty and grateful because I want ALL the families to have one, too. But I feel no guilt for having a happy moment out loud, and one I can share in public. Maybe because I long to share your happy moments, too. Or maybe because I know that vacations and families and friendships and children and life are made up of the happy mixed with the unhappy. The joyful mixed with the barely-holding-it-together. The gasps of air at the surface mixed with drowning. The magic and the mess intermingled. Grace and grime all the time.
Maybe, for me, it’s because every moment like this one,
comes hand in hand with innumerable moments like this one
where our son, who experiences Post Traumatic Stress Disorder from an early life that was deeply unfair to him, falls all the way apart.
Our vacations, therefore, are moments of trauma and triumph strung together haphazardly. Angst and sorrow sprinkled with joy. Frustration, mostly, for this precious man-child, and tiny glimpses of freedom, now and then, and not often enough.
I don’t usually share much with you about Ian’s life or ours with him. I have occasionally here and here and here and here. But mostly we keep what he experiences to ourselves because each of our kids has control over the “publish” button when it comes to their stories, and Ian is the most private of our kids, the one who’s most bewildered about this strange life; the most uncertain that there are good things out there for him; the most sure that he’ll be hurt again like he was in his first life, before we were there were champion him and fail him and champion him again, like all parents who mean well and succeed and fail in equal measure but still hope they’re not screwing it up entirely.
I took the pictures below of Ian with his service dog, Zoey, months ago, because he asked me to. He wanted to “watch Zoey do her job, Mom,” and so I sat with him while she worked as she so often does to ease anxiety and panic that overtakes my son but which he’s helpless to explain, bearing the double burden of PTSD with an expressive language disorder that keeps most of his thoughts and feelings stuck inside with no way out. I’ve kept these pictures private, of course, because they’re really not mine to share.
Except that Ian has asked me now for a week straight to show them to you.
We had a conversation after vacation. A conversation about Miss Zo and her special place in our lives. A conversation about the many who suffer, as Ian does, from PTSD and myriad other disabilities. A conversation about mental illness, with which I am far too familiar myself. And a conversation about what it’s like to feel so terribly alone, wading through the muck and mire and wondering whether there’s a way out.
Ian said, “Show them, Mom.”
I said no. A whim on his part didn’t seem like a good enough reason to show his anguish to the world.
He still said, “Show them.”
I said no again. And again. And again.
But he’s asked me every day for a week after that convo. Until I said, “Why, Ian? You usually want to keep this to yourself. You usually don’t want people to see this. And once we show them, it’s not possible to take it back.”
And Ian said, “So they’re not alone, Mom. So they know they’re not alone.”
And so, to honor my son and his battle, my son the hero, and his dog the hero, too, here are the pictures we don’t show on Facebook. A face of PTSD and the dog who would lead him to the light at the end of each tunnel:
With love, friends, and the reminder from my kid that we’re not alone,